Our Mission:
HELP INSPIRE SUPPORT
We create opportunities to help, inspire, and support children living with epilepsy.
A child with epilepsy requires a team of professionals to develop a comprehensive program for managing seizures while also providing families access to treatment options beyond the seizures themselves. For example a multidisciplinary team of Pediatric Epileptologists, Nurse Practitioners, Pharmacists, Neurosurgeons, Registered Dietitians, Neuropsychologists, and Social Workers may be utilized to aid the child’s treatment program.
With almost 500,000 children living with epilepsy in the United States there are simply not enough resources for specialized care and families often have to wait up to 12 months to see a specialist if one even exists in their city.
We can change that.
Our Vision
A community dedicated to expanding the availability of specialized care for children living with epilepsy.
“Although I am very fortunate to have outgrown my epilepsy, I will never forget what it feels like to have a seizure.”
Kevin Messenger / Founder - agws
Epilepsy by the numbers
Epilepsy is the fourth most common neurological disorder in the world and currently, there is no cure. If you have epilepsy, surges of electrical activity in your brain can cause recurring seizures. Causes of epilepsy are different for each person, and some people have no identifiable cause. In others, doctors can trace epilepsy directly to genetics, brain trauma, autoimmune disorders, metabolic issues, or infectious diseases. Each cause has different signs, diagnoses, and treatment options.
1 in 26
The odds of developing epilepsy in the United States. An estimated 3.4 million Americans currently live with epilepsy.
50%
The number of people diagnosed with epilepsy where the cause is unknown.
$2.00
More people live with epilepsy than those with Autism, Parkinson’s disease, MS and Cerebral Palsy combined. Yet federal funding for epilepsy research is about $2 per person affected - nowhere near the federal funding for the previously mentioned conditions which range from $65 to $1147 per person affected.
150,000
The number of people diagnosed with epilepsy each year.
500,000
Approximately the number of children currently living with epilepsy.
1 in 1000
The number of people that die from SUDEP - sudden, unexpected death of someone with epilepsy, each year.
Let’s take this journey together!
We create opportunities to help, inspire, and support children living with epilepsy. However, the individual donors, corporate partners, and event driven donations are 100% responsible for the impact we are able to make in the epilepsy community. Thank you for your donations, thank you for getting involved, and thank you for joining us on this amazing journey. The doctors, families and most of all, children of this community need your help in the fight to end epilepsy.
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